Educating the Community
Huntington’s Disease is a complicated disease. Living with the disease can be very tough, not just for the person with HD but the everyone impacted.
The disease affects each person differently and because it is a rare disease, many people including healthcare professionals aren’t aware of it.
There are also lots of things going on in the world of HD research that can be difficult to understand.
HDYO provides educational resources in easy-to-understand formats. We know this is really important when it comes to improving knowledge for families and the wider community and helps people cope with HD in their lives.
New to Huntington's Disease?
If you’ve just found out that Huntington’s Disease is in your family, you may be feeling a range of emotions. We’re here to help with that. Take a look at our resources, and please if you have any questions contact us at support@hdyo.org
Are you under 12? If you’re under 12, we have HDYO Land: an interactive, colorful and fun program to help you learn about Huntington’s Disease.
Are you over 13? If you’re 13 or over, HDYO has put together a guide through our content to help you learn the basics, starting with our What is HD? Article. There are a number of articles as part of this guide. At the bottom of each page, you will see suggested articles. Just click on the next article in the series to continue reading.
Bring Hope to Huntington's Disease Families: Urge the FDA to Uphold Accelerated Approval
November 14, 2025
Caregiver Burnout Toolbox
October 25, 2025
Understanding HD Stigma
October 25, 2025
Collaborative HD Care
October 25, 2025
HDYO Camp
October 09, 2025
HDYO Camp Under 18
October 09, 2025
HDYO Camp 18 and Over
October 09, 2025
Impacts of Genetic Testing on Family Tree
September 20, 2025
Empowering Young HD Caregivers
August 02, 2025
#HDCONNECT Retreat
June 23, 2025