Support HDYO

HDYO is the only organization who focus solely on supporting young people impacted by HD around the world. Will you help us?

<span class="translation_missing" title="translation missing: en.hdyo.land.loading">Loading</span>
Home Language and Accessibility What is HD? New to HD? Find Resources Research Ask for Help About HDYO News Videos PDF Resources Join Mailing List Kids Teens Young Adults Parents and Family JoHD Friends Professionals DONATE! Privacy Contact Us

Educating the Community

Huntington’s Disease is a complicated disease. Living with the disease can be very tough, not just for the person with HD but the everyone impacted.

The disease affects each person differently and because it is a rare disease, many people including healthcare professionals aren’t aware of it.

There are also lots of things going on in the world of HD research that can be difficult to understand.

HDYO provides educational resources in easy-to-understand formats. We know this is really important when it comes to improving knowledge for families and the wider community and helps people cope with HD in their lives.

New to Huntington's Disease?

If you’ve just found out that Huntington’s Disease is in your family, you may be feeling a range of emotions. We’re here to help with that. Take a look at our resources, and please if you have any questions contact us at support@hdyo.org

Are you under 12? If you’re under 12, we have HDYO Land: an interactive, colorful and fun program to help you learn about Huntington’s Disease.

Are you over 13? If you’re 13 or over, HDYO has put together a guide through our content to help you learn the basics, starting with our What is HD? Article. There are a number of articles as part of this guide. At the bottom of each page, you will see suggested articles. Just click on the next article in the series to continue reading.

Brochures & Resources
2024 North American Camp
What is Huntington's Disease?
The Basics of JHD
Research Video Series
History of HD
The HD Gene: Under the Microscope
What Does It Feel Like to Have HD?
Breaking Down Barriers

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

Kids Teens Young Adults Parents and Family JoHD Friends Professionals