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HDYO is the only organization who focus solely on supporting young people impacted by HD around the world. Will you help us?

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Language and Accessibility

JoHD

Research Terminology

The Basics of JHD

Living in a Family with JHD

Resources for JHD

JOIN-HD - Juvenile onset Huntington's Disease Registry

The Difficulty in Diagnosing Juvenile HD

The Invisible Siblings

Talking About JHD with Children and Young People

Sheenam’s Wish (currently UK only)

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

Kids Teens Young Adults Parents and Family JoHD Friends Professionals