Young people impacted by Huntington’s disease (HD) are over twice as likely to experience traumatic events in their childhood compared to those not in families with Huntington’s disease. HDYO is the only organization who focus solely on supporting young people impacted by HD around the world. We provide services such as online and face-to-face counselling, educational content for all age groups to understand all aspects of HD, youth camps, young adult conferences and events. We’re a registered charity in the UK (1145781) and the US (EIN: 45-4955538). Will you help us?

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Since launching in 2012, despite being a small charity, we have made a significant impact on young people impacted by HD around the world, see an overview of our work below: