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HDYou Community Stories: Vivir Con Ella

March 20, 2024

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:


We continue to share the many different experiences of the global community impacted by Huntington's disease. Javier Lafuente has been raising awareness about HD since his wife was diagnosed. He joined HDYO Ambassador Claudia to learn about what inspired him to create his blog and social media presence, Vivir Con Ella, and give his advice to young people impacted by HD.

This conversation is in Spanish with English subtitles. Multiple languages are offered on YouTube via closed captioning.

Videos will be archived on Facebook and YouTube after the premiere as well.

HDYou: Community Stories is sponsored by Roche, Sage Therapeutics, Teva Pharmaceutical, uniQure, Wave Life Sciences, The Griffin Foundation, and Neurocrine Biosciences.

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

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