Get Support & Resources
- International Suicide Hotlines
- Local Resources
- Coping
- Staying Connected Online
- Ask a Question
- Dealing with a Diagnosis
Educating the Community
- Celebrating 15 Years – HDYO Community Impact Survey
- #HDCONNECT Retreat in Partnership with Factor-H
- Nurturing Social Bonds
- Bring Hope to Huntington’s Disease Families: Urge the FDA to Uphold Accelerated Approval
- Caregiver Burnout Toolbox
- Understanding HD Stigma
- Collaborative HD Care
- HDYO Camp 18 and Over
- HDYO Camp Under 18
- HDYO Camp
- Impacts of Genetic Testing on Family Tree
- Empowering Young HD Caregivers
- #HDCONNECT Retreat
- Decisions on Genetic Testing
- Mental Health Toolkit
- Understanding At-Risk Status
- Understanding Gene Negative
- Understanding Gene Positive
- The Impact of Trauma
- Strategies to Engage Young People
- Signals to Notice from Young People
- Parent And Guardian Involvement
- Using Empathy
- Understanding the Young Person’s Journey for HD Professionals
- Conversation Starters for Young People
- Brochures & Resources
- 2024 North American Camp
- What is Huntington’s Disease?
- The Basics of JHD
- What Does It Feel Like to Have HD?
- Research Video Series
- History of HD
- The HD Gene: Under the Microscope
- HDYO Land
- Breaking Down Barriers
- Matt’s Chats
Empower Young People
- Celebrating 15 Years – HDYO Community Impact Survey
- HDYO Virtual International Congress
- Get Involved
- HDYO Ambassadors
- Follow HDYO on Social Media
- Youth Mentorship
- Links
- Know Your Rights
Research
- Celebrating 15 Years – HDYO Community Impact Survey
- Observational Studies in HD
- Clinical Trials in HD
- Research Terminology
- HDYO Survey Series
- JOIN-HD – Juvenile onset Huntington’s Disease Registry
- HDBuzz Research News Updates
- Enroll-HD
About HDYO
- Donate to the Huntington’s Disease Youth Organization
- HDYO Team
- About HDYO
- Privacy Policy
- Contact HDYO
- Financials and Reports
- Sharing, Licensing and Reusing HDYO Content
- Who We Serve
- Translator Team
HD Information In Other Languages
- Hva er Huntingtons sykdom?
- ハンチントン病とは何ですか?
- हंटिंगटन रोग क्या है?
- ما هو مرض هنتنغتون؟
- بیماری هانتینگتون چیست؟
- ہنٹنگٹن کی بیماری کیا ہے؟
- Vad är Huntingtons sjukdom?
- ¿Qué es la enfermedad de Huntington?
- O que é a Doença de Huntington?
- Cos’è la malattia di Huntington?
- Qu’est-ce que la maladie de Huntington?
- Wat is de ziekte van Huntington?
- Was ist die Huntington-Krankheit?
- Hvad er Huntingtons sygdom?