Celebrating 15 Years – HDYO Community Impact Survey

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As HDYO celebrates 15 years, we want to understand how we’ve supported young people impacted by Huntington’s Disease, what has made the greatest difference, and how we can continue improving for future generations.

Who Can Participate?

Anyone who has utilized any HDYO resource as someone directly impacted by HD or as a professional supporting someone directly impacted.

This survey should take approximately 10–15 minutes to complete.place and who can come.

Languages

We are in the process of translating these surveys into as many languages as possible. We will update this website as soon as new translations are available.

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

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HDYO is the only organization who focus solely on supporting young people impacted by HD around the world. Will you help us?