HDYO Releases New Survey!

We Need YOU!

We already know some of the barriers of participating in research, like burdens with work, family, etc. This isn’t replicating those findings, but it is diving deeper in feelings and knowledge around different research initiatives. We want to use this information to enhance educational initiatives for HDYO and other organizations to better educate and empower young people and community members to about research and understand how to get involved.

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

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HDYO is the only organization who focus solely on supporting young people impacted by HD around the world. Will you help us?